Harnes & Muita linkkejä
Suomen MS-liitto
MS-liiton kotisivut.
Pieni sosiaaliopas
Kun sairastut tästä opastusta ja ohjeita.
Tietokoneen apuohjelma
Jos hiirenkäyttö on ongelma kokeile tätä apuohjelmaa
Downhill Dilly
Auta Dilly pyörätuolilla alas mäkeä... tosi cool peli
3R:n kotisivut
HUMS:n nuorten paikalliskerhon kotisivut.
MeSa:n kotisivut
HUMS:n paikalliskerhon kotisivut.
OsMs
Oulun seudun MS-yhdistys ry
Kehitysvammahuollon tietopankki
Aakkosellinen hakemisto.
Kynnys ry.
Vammaisten kansalaisoikeusjärjestö.
Rullaten ry.
Rullaten ry on vuonna 1987 perustettu vammaisjärjestö, jonka
tehtäväkenttä käsittää viestinnän, neuvonnan ja tietopalvelun.
Fair Sport ry.
Vammaisliikuntakasvatus - FAIR Sport ry.
SOPHIA Etiikkatesti
Löydä oma ajattelijasi historiasta.
Harnes-linkkejä
Neurocity
NeuroCity toteuttaa säätiön perusajatusta neurologisesta sairaudesta
ja häiriöstä kärsivän lapsen ja nuoren keskitetystä ja kokonaisvaltaisesta hoidosta.
National Ataxia Foundation
Office of Rare Diseases
Tietoa yli 6000 harvinaisesta sairaudesta
AISA
Associazione Italiana per la lotta alle Sindromi Atassiche
Ataxia telangiektasia AT, Louis-Bar Syndrom
Socialstyrelsens kunskapsdatabas om små och mindre kända handikappgrupper.
Bandaids and Blackboards
This is a site about growing up with medical problems...any ole type.
Its goal is to help people understand what it's like, from the perspective of children and teens.
br.geocities.com/ataxianet
The web page Ataxianet (ataxia in Portuguese, from Brazil).
Ataxia Support Group
Based in England, Ataxia serves the whole of the UK,
Ataxia Fact Sheet
Melissa's Page
I have written how SMA affected me as I grew up.
Euro-Ataxia
Tietoa perinnöllisistä ataksioista.
ADCA-Association of The Netherlands
(in Dutch)
Parents Exchange
An information,referral, and advocacy service for parents and caregivers of children with disabilities and professionals
Broward County Florida Ataxia Support Group (BCFASG)
The support group encourages it's members to make other people aware of ataxia.
Living with Spinocerebellar Ataxia
Patricia B. Hamilton
Disabled Peoples' International
The purpose of Disabled Peoples' International (DPI) is to promote the Human Rights of People with Disabilities through full participation, equalization of opportunity and development.
INTERNAF
INTERnational Network of Ataxia Friends.
FA Research Timeline
InterNAF -- overview of major research breakthroughs
Ataxia
Just Because We Have a Disability Doesn't Mean We Byte
Designed by kids with disabilities.
Disability social history project
The Disability History Project is a community history project and we welcome your participation...
#Disabled chat
Where people with any kind of disability or illness can get together and chat about anything they want
Episodic Ataxia
Mark's Page on Hereditary Episodic Ataxia
Equal Access Cafe
Room for people with disabilities to chat with others.
FARA
Friedreich's Ataxia Research Alliance (FARA).
Friedreichs ataxi
Socialstyrelsens kunskapsdatabas om små och mindre kända handikappgrupper.
Orphanet
Tietoa harvinaisista sairauksista ja "orphan" lääkkeistä
The Centre of Rare Disorders (Norway)
A centre with national responsibilities related to 15 rare
Ataxia AOL
Amercan OnLine
Project dERE
Project dERE stands for The disABLED Electronic Resource Exchange Project Inc.
Project dERE
Working with Corporate America to obtain and refurbish outdated computer systems and distribute to disABLED individuals.
ABLEDATA
Putting assistive technology and disability related resources at your fingertips
Access-Able Travel Source
Check out accessibility before you travel!
ASAP
Tietoa syringomyeliasta.
NAF
National Ataxia Foundation's homepage
ATAXIA
Deutsche Heredo-Ataxie Gesellschaft
Ataxia support group based in Germany
ATCP
A-T Children's Project - Ataxia Telangiectasia
ACAF
Association Canadienne de l'Ataxie de Friedreich
VLAF
Ataxia support group in Belgium.
Colorado Health Net
Information and medical resources for persons with chronic medical conditions
Stories About Chronic Illness
Ihmisten kokemuksia kroonisista sairauksista
Here is the Motability Lifesytle pages
EDF
Welcome to the European Disability Forums Website
Eurordis
Harvinaisten eurooppalainen potilasjärjestö.
FAPG
Friedreich Ataxia Parents Group
Northern Colorado Support Group
The Northern Colorado Area NAF Support Group.
GeneClinics
Tietoa erilaisista ataksioista.
The FSP page
Tietoa spastisista parapareeseista.
Wren's Page
Personal homepage of our friend from Laguna Beach, who has late onset FA
Ataxia; Treatment, Prevention, Cure
KUMC ATAXIA
Through the Looking Glass
Clinical and supportive services, training and research serving families in which one or more members - whether parent or child - has a disability or medical issue.
MDA Austrialia's FA webpage
Good introductory information
MDA USA's Homepage
Information on Muscular Dystrophies and other neuromuscular disorders.
DMD Press release
MDA announced Jan. 16, 1998 that a human trial of gene therapy
Quest
MDA's bimonthly national magazine containing news and features on living with a neuromuscular disease.
Ataxia Telangiectasia
Homepage for the AT Children's Project. Ataxia Telangiectasia is a rare children's ataxia.
Med Help International - Cerebellar Ataxia Archive
The Neurology and Neurosurgery Forum Cerebellar Ataxia Archive Re: LIVING WITH A POSSIBLE MS DIAGNOSIS
Heriditary Ataxias
Technical information, Neuromuscular Desease Center, Wash University School of Medicene, St. Louis
Our-Kids
Devoted to parents raising special kids with special needs.
At your own speed
The Internet Radio Program For The disABILITY Community
Duchenne Parent Project
Their mission is Funding Science, Helping Children", with Duchenne and Becker MD.
Rehabilitation International
Rehabilitation International is a federation of national and international organizations
Tuesday's Child Magazine
Offers parents practical information and support
United Mitochondrial Disease Foundation
Mitokondriotaudit - tukea ja tietoa
Ataxia Northwest
Support group in England
ADA Information
Listing of various government webpages on Americans with Disabilities Act
Aaron's Webpage -- Aaron Kittel
Recent Progress in Dominant Ataxia Research
Ewout Brunt, Euro-Ataxia Newsletter - January 1998
Hearing Assessment in Friedreich's Ataxia
About sensorineural hearing loss.
European Federation of Hereditary Ataxias (Euro-Ataxia)
An international non-profit organization formed by national
Euro-Ataxia
Newsletter of European Federation of Hereditary Ataxias, Belgium
FRDA Research Update
Massimo Pandolfo, Euro-Ataxia Newsletter - January 1998
Research into FA Hearing Problems
Like a lot of FA'ers I'm having hearing problems...
Michael Pallis
aka The Rider of the Great White Sheba, info on horseback riding with disabilities.
Keys to a Successful Life
A must read, written by Michael Pallis about living with FA or a disability.
OMIM Friedreich
Tietoa Friedreich-ataxiasta.
OMIN-DataBase
Hakusivu tietokantaan.